What?

A blog recording the thoughts of a mum of one who does a lot of voluntary work because it's more fun than resuming her career and is a bit worried about the state of the nation.
Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Thursday, 18 November 2010

Civil times

Another form of justifying not working to self is going on courses so today I went on a course called "Business planning for the voluntary sector", expecting to pick up some tips about setting out spreadsheets clearly and so on. But at least half the course was about the context we are in, sometimes called "the operating environment" ie. "What's going on and what will happen next?"

The first thing I learned is that "The Voluntary Sector" is now the last-but-one-name and that, if you failed to talk about "The Third Sector" during the last Government, you now have to bypass that name and talk about "Civil Society". Civil Society is not the same as the Big Society, because the Big Society is supposed to be everyone, not just those of us who are already volunteering who can be smug about having a special name because we are "in the vanguard" (as the Socialist Workers used to say).

People on Civil Society courses are very civil to one another, and drink a lot of tea with crooked little fingers, but they are not very civil about the current Government. Soon they may not even be civil to one another, because, as well as the competition for what's left of grant money, something called "the personalisation agenda" is introducing competition into the provision of services for those people who are still judged worthy of state help. Instead of being told to go to a particular day centre or to have meals on wheels, they will be given their own budget to spend on what they like. We've already seen headlines in the tabloids about the disabled man whose going to spend it on going to prostitutes, but until now it hadn't really sunk in that if they want to keep their organisations going the man from the disabled riding association will be going head to head with the lady from the music therapy trust in the battle for budgets. They were completely bemused.

Not all of this seems bad to me. I wish we'd been able to buy days with a chainsaw gang for my father-in-law instead of sending him to the dementia centre: he would have enjoyed it far more. This summer we went to a lovely children's farm in the Netherlands which was partly staffed by mentally handicapped people who spend their budgets there. In the environment sector we have already dipped our toes into the world of "meaningful daytime activities" by taking on people with mental health problems to help with outdoor conservation work. I don't think I'll be spending my budget at a day centre if I'm ever old and decrepit enought to get one: I'd much rather be on a horse or feeding the chickens.

But I wonder if this is all a big con. Civil Society may spend a lot of time drawing up its business plans with nice spreadsheets, and then find that hardly anyone who isn't ninety five and in a wheelchair with dementia actually still has a budget. At that point organisations will have to close down because their clients are not quite old, disabled or distressed enough. Then the level of incivility towards the Government will go through the roof.

Thursday, 5 August 2010

Dripware and Dementia

Have spent the last few days in Wales helping to sort out my father-in-law's entry into residential care. He suffers from Parkinson's disease and dementia and is not easy to care for so large numbers of social workers and medical people have been involved in supporting my mother-in-law over the years.

It has felt like there has been a certain amount of resistance to taking him into full time care as he is only in his sixties and likely to be there for many years which has big cost implications at a time when the local authority and NHS are facing massive cuts. He needs medical care and close supervision and has proved difficult to manage in some of the local residential homes which he has sampled during respite breaks. I'm afraid most homes are more geared up for pleasant older ladies who enjoy singing than former engineers who are too shaky to feed themselves one day but capable of dismantling fire extinguishers and walking out and hopping on the bus because they are bored the next day!

So, having elected to accompany my mother-in-law to the care meeting, (the other option was staying at home to put flat pack furniture together), I found myself at the local hospital in conference with five psychiatric social workers and nurses. He has been attending the day centre there for several years and they have done a wonderful job of keeping him reasonably happy, partly by convincing him that he is working there as the gardener. The centre attempts to raise some money from selling items made by the attendees and I was particularly drawn to some teapots decorated with multi-coloured drips of paint. But I don't think dripware teapots are going to go very far towards funding these facilities which are sanity-saving for carers like my mother-in-law. They can only use unqualified volunteers for very limited tasks like making the tea so the Big Society can't help much.

Luckily everyone at the conference agreed that the moment for residential care had arrived. We managed to wade through the forms and find the right bank statements and letters from the benefits agency in time for him to take up a place which had come up at a home ten minutes down the road where he will hopefully be happy. However, even understanding the financial position has been difficult and led to us needing help from the Parkinson's Society who is having to negotiate with social services about how much of a financial contribution mother-in-law will have to make. I can see that volunteers who understand benefits, pensions and the difference between NHS and local authority funding are badly needed.

Meanwhile my daughter spent a dull couple of days helping with the flatpack bedroom suite and deciding which clothes her granny can make for the Build-a-Bear teddies now she has more time on her hands.....